Fictional Normal

I just got back from a two-week cruise. I could tell you about the surreality of no longer being camera shy (as though not having my picture taken would hide the fact that I was fat), or the subtle shifts in how I viewed my fellow passengers, but what I want to focus on is the food.

There are two types of dining on a cruise. The first is the all-you-can-eat kind (which some passengers seem to take as a personal challenge) and there is the sit-down kind. Our evening meals were all the sit-down kind with the same two servers, so we got to know them quite well. The dinner menus were normally two or three appetizer selections, a few soup and salad options, several entrees, and a few desserts. I normally ordered either an appetizer or salad, and an entree, and then dessert. Every time, I would eat a few bites of the dish and be ready for the next one. It took a week to convince our servers that this was just how I eat. I was never going to finish anything, and I didn’t appreciate being harangued to keep eating. Yes, the food was excellent. No, I wasn’t going to have any more.

At the all-you-can-eat places (the breakfast/lunch buffets and the fast-food type places near the pool), I realized that I no longer felt self-conscious about going up and getting an ice cream cone or plate of fries. I was going to eat what I was going to eat, and didn’t particularly care what anyone thought about it. I was surprised, though, at the number of people who piled their plates full at every meal, and then sat there looking miserable as they ate. If food is your comfort, shouldn’t you at least enjoy it?

Here’s where things got weird. Over the course of two weeks, I gained weight just like a lot of people do. And by “gained weight,” I mean that I was .1 pounds over my normal range. In the past, I would likely have gained at least 5 pounds while on vacation, and I would have done what everyone does: I would have stopped eating and started working out 12 hours a day. And in the past, I would have either lost none of the weight, or actually gained another pound or two. That was the reality I dealt with, and the whole time, I was angry that I wasn’t “normal.” “Normal” people didn’t gain five pounds on vacation. “Normal” people lose the five pounds once they get back. (I know this isn’t necessarily true – but in my mind, this was how it worked for everyone who wasn’t me.)

When I got back, my eating habits went back to what they always are when I’m at home, as did my exercise routine. And just like that, my weight was back to what I usually expect. I’m now what I used to think of as “normal.” But am I?

I’m starting to realize that the reality I experienced before was much closer to normal than the one I experience now. That not everyone can step back into their normal lives and lose their vacation weight in a week. But I also realize that I had been sold a lie by a commercial culture whose main aim is to get me to hate myself enough to buy endless products to improve myself. The “normal” I had aimed for was a fantasy that I would never have achieved on my own. In so many ways – from the variety of clothing options available to me to the way I do my grocery shopping – the definition of “normal” has changed radically for me. “Normal” is a fiction used to make me feel like I’m not part of the group, and that I should want to be.

I don’t want to be part of the group, especially any group whose main focus is how I look. I don’t think anyone should be subjected to that. The way to break out of that mentality is to first recognize that if your definition of “normal” comes from outside yourself – from the media or your social group or even your family – it’s fictional. Normal comes from inside yourself. Normal is where you feel healthy and comfortable in your own skin. It should never be anything else.

Not Handicapped, Not Disabled, Not Mentally Ill

A few days ago, in the midst of talking about the effects of the fire on my life, I slipped in the news that I now have a label – “autistic.” I’ve had the label “high functioning” forever, but there was nothing after that modifier to explain why functioning well was in any way exceptional. And now there is.

Let’s back up a bit. Ever since I was a child, my mother has joked that I am her “crippled” child, because I’m left-handed. “Poor baby, you can’t do it because you’re using the wrong hand,” she’d say when I was struggling with something like using a can opener or pair of scissors. I knew she was joking. I knew she didn’t really think of me as disabled, but it left me with an important piece of information.

Differences are something to be mocked and pitied.

It doesn’t matter how one sees oneself. If others see you as being less than them, they pity you. And any difference that’s not commercially exploitable (extraordinary good looks, athletic ability, brilliance resulting in salable products) makes you less than.

I’ve had to adapt, adjust, and mask all my life, and for most of my life, it didn’t help. When I was a child, my intolerance for enormous family functions, for overstimulating environments, for physical discomfort was seen as my being willful, and I was lectured, yelled at, sent to my room. As an adolescent, I was ostracized, humiliated, and ridiculed. As an adult, I have been passed over for promotion, given poor job performance reviews (not for the quality of my work, but for the quality of my social interaction), and been largely discounted.

When I was a kid, there was no such thing as autism.

There were disruptive kids, angry kids, bored kids. They were behavioral problems that kids, with proper guidance and discipline, would grow out of. The lack of any kind of clinical label meant that nobody felt sorry for us or thought we needed any kind of special consideration apart from detention.

This morning, my sister sent me this article, and when I read the title, I immediately felt insulted. Now there’s a label for me that other people use for themselves. I don’t know what to do with that label, because it feels to me like another way of manipulating people. Just as I reject the “victim” label after the fire, I reject the “autistic” label, not because I don’t fit all the criteria, but because I can’t stand the fact that people who didn’t like me or didn’t understand me before will suddenly cut me slack because of that label. Because they think that they know something about me now that they didn’t before. And that’s not true.

If you’ve spent any time with me, you know as much about me as there is to know. Any label applied to me – “writer,” “depressed,” “autistic,” – is irrelevant because labels are stereotypes that homogenize everyone to whom they’re applied. I’ve spent years trying to tell people “yes, I’m [insert label here],” only to have to explain that it’s true, despite my not fitting their notion of what a person with that label looks or acts like.

If you have known me for a while, you know that I’m not disabled, handicapped, mentally ill. I’m just me, and I’m just fine, regardless of what label you choose to use for me. And if you feel the need to apply those labels to me, I have a few of my own that I’ll apply to you.