Tomorrow Is Yesterday In a Different Place

One of the many things I lost in the fire was all my archery gear. I had a beautiful one-piece recurve bow and dozens of arrows, a left-handed hip quiver, a couple of arm guards – all the stuff. And then I didn’t.

I’ve been part of the local archery club for a couple of years, but first the coronavirus hit and nobody could use the indoor or outdoor ranges, then I lost my house and all my stuff and was relocated too far from the range to make using it practical. In the time since I last saw them, I’ve lost over 100 pounds, and when I went to replace my bow, quiver, arrows, etc., nobody at the archery shop I’ve been frequenting for years recognized me.

I’ve seen lots of episodes of different television shows about exactly that scenario. A person walks into a place they’ve been in many times, and the people there don’t recognize them. On television, the person runs around screaming at everyone they meet until they wake up, or the devil shows up and tells them they’re in hell, or until they go running out of the shot, driven insane by the knowledge that nobody knows them.

In real life, I mentioned that I’d been in various archery leagues and done well. That I am an archery club member. That I was on a team with the club president and his family, that I had just been to the house of the club treasurer. That I’d taken third in the last league I participated in at the archery range all of us frequented.

Nothing. Not a glimmer of recognition.

Then I started thinking about other places I used to go a lot, and other people I thought I knew, and wondering whether they’d recognize me. When I had an office downtown, I would walk down the street from my office and run into half a dozen people I knew. Would any of them recognize me?

That feeling of disorientation I feel is battling with my deep need and desire to be left alone. Maybe this is fulfilling my dream of being able to walk through the world invisibly. Which is better? To be completely visible, but no one recognizes you, or to be invisible?

Apple Watch Out – It’s a Trap!

Let’s talk about my day. I’ve got a lot of tasks I need to get done every day, and most of them require sitting for stretches of time. Editing a half hour of audio can take up to three hours. Writing 5000 words can take all day. And then there’s writing software requirements documentation, which is its own little hell. To make things worse, if someone or something interrupts me, it takes me some time to get back into the flow of things, because switching contexts is expensive.

I already carry around a ton of guilt about what I’m doing versus what I’m not doing. If I’m sitting down writing, I’m freaking out that I’m not exercising, or doing software requirements, or editing a podcast. If I’m out exercising, I’m thinking about the work sitting waiting for me at home. And if I’m doing any of those things, I’m not doing my own writing, and I feel like a failure pretty much every second of every day for that.

And Apple Watch is right there to tell me all about it. But not just that – it also tells me when there’s someone at my front door, when my mother opens her garage door 70 miles away, when anyone texts me, when someone posts something to the work Slack account, when my Amazon package has shipped, when my Amazon package has been delivered, and, at 10 minutes to the hour every hour, that I should stand up and walk around.

It wasn’t that bad when I first got it, but the more companies plug themselves into my devices, the more everyone is constantly trying to get my attention, and it’s not like I can manufacture any more of that. It’s starting to affect my mental health. I realized that when I’m physically ill, I tend not to put my watch on because I want to be able to sleep all day without having it buzz me every hour to tell me to walk around. When I’m deep into writing, I take it off because I don’t want to have to respond to people’s texts or phone calls.

What if I just took it off and never put it back on? What happens when the nonstop notifications stop? I don’t need my watch to tell me when to exercise. I don’t need it to tell me what tasks I have to do. And if Apple Pay is that important to me, I still have it on my phone. I didn’t realize how much of my mind that thing was taking up, because it didn’t happen all at once. But the nice thing is that by just taking the stupid thing off, I get it back all at once.

Removing the Frog’s Nervous System

My life recently has been defined by three things: losing about 100 pounds, losing everything I owned in a fire, and discovering that I’m on the autism spectrum.

  • Thinking about any aspect of my life, I bump up against those three things. Perhaps only two of those things at a time, but they’re always there.
  • How I react to my friends’ rallying around me after the fire: Do they love me because I’m quirky, or because I’m more attractive now that I’m no longer fat?
  • How I replace clothing since I can’t go into a store and try things on: Sure, I’m a “medium,” but what size is that in vintage clothing? At Banana Republic? At Target? And where do I find clothes that suit my very particular taste?
  • How I interact with strangers, who are the lion’s share of my interactions since the fire: Are they being kind, courteous, solicitous because they find me attractive, or because of the huge effort I put into seeming normal?

Since the fire, I’ve been thinking about my life pre-weight loss, pre-diagnosis, pre-fire. I know I’m not the only person in the world who feels that 2020 has drawn a line across my life, which was one thing before, and a very different thing after. What part of that earlier me is still there? How could things have been different?

Without the fire, I don’t think I would ever have had a reason to examine my life in the detail I have in the past three and a half months (as of this writing, it’s been 105 days since we lost our house). On the other hand, I have always been self-reflective, second guessing my every thought word and deed almost before they are completed.

I read a book where two characters were discussing two separate, but intertwined things, and one character expressed the desire to separate them. The other character said that separating them would be like removing the nervous system from a frog intact, and without killing the frog. It can’t be done, and it would be painful and disturbing to try.

I’m driven mad by how unscientific an experiment my life is. I can’t isolate any one of the above events and observe the public reaction from that thing in isolation, and if I were to hand everyone I interacted with a questionnaire that said things like “Which of the following factors was most influential in your interaction?” people would tell me they had the plague as an excuse to never interact with me. Sadly, I’m not smooth enough to figure out how to subtly ask stuff like this without the other person knowing that’s what I’m getting at.

We are each an amalgam. Not just emotionally – composed of every experience we’ve had, sensation we’ve felt, emotion we’ve endured – but physically. Every human being is an amalgam of human bits and a unique group of bacteria and various symbionts that live in our blood and guts, making each person a literal aggregate. So, it looks like going forward, I can’t separate any of the large defining events of 2020 in my experience.

I came into 2020 as an optimistic, fat little tadpole. I go out as a lean, muscular, and quite whole frog.

Not Handicapped, Not Disabled, Not Mentally Ill

A few days ago, in the midst of talking about the effects of the fire on my life, I slipped in the news that I now have a label – “autistic.” I’ve had the label “high functioning” forever, but there was nothing after that modifier to explain why functioning well was in any way exceptional. And now there is.

Let’s back up a bit. Ever since I was a child, my mother has joked that I am her “crippled” child, because I’m left-handed. “Poor baby, you can’t do it because you’re using the wrong hand,” she’d say when I was struggling with something like using a can opener or pair of scissors. I knew she was joking. I knew she didn’t really think of me as disabled, but it left me with an important piece of information.

Differences are something to be mocked and pitied.

It doesn’t matter how one sees oneself. If others see you as being less than them, they pity you. And any difference that’s not commercially exploitable (extraordinary good looks, athletic ability, brilliance resulting in salable products) makes you less than.

I’ve had to adapt, adjust, and mask all my life, and for most of my life, it didn’t help. When I was a child, my intolerance for enormous family functions, for overstimulating environments, for physical discomfort was seen as my being willful, and I was lectured, yelled at, sent to my room. As an adolescent, I was ostracized, humiliated, and ridiculed. As an adult, I have been passed over for promotion, given poor job performance reviews (not for the quality of my work, but for the quality of my social interaction), and been largely discounted.

When I was a kid, there was no such thing as autism.

There were disruptive kids, angry kids, bored kids. They were behavioral problems that kids, with proper guidance and discipline, would grow out of. The lack of any kind of clinical label meant that nobody felt sorry for us or thought we needed any kind of special consideration apart from detention.

This morning, my sister sent me this article, and when I read the title, I immediately felt insulted. Now there’s a label for me that other people use for themselves. I don’t know what to do with that label, because it feels to me like another way of manipulating people. Just as I reject the “victim” label after the fire, I reject the “autistic” label, not because I don’t fit all the criteria, but because I can’t stand the fact that people who didn’t like me or didn’t understand me before will suddenly cut me slack because of that label. Because they think that they know something about me now that they didn’t before. And that’s not true.

If you’ve spent any time with me, you know as much about me as there is to know. Any label applied to me – “writer,” “depressed,” “autistic,” – is irrelevant because labels are stereotypes that homogenize everyone to whom they’re applied. I’ve spent years trying to tell people “yes, I’m [insert label here],” only to have to explain that it’s true, despite my not fitting their notion of what a person with that label looks or acts like.

If you have known me for a while, you know that I’m not disabled, handicapped, mentally ill. I’m just me, and I’m just fine, regardless of what label you choose to use for me. And if you feel the need to apply those labels to me, I have a few of my own that I’ll apply to you.